The most simple way to support the charity is by becoming a Friend of the PSF UK. Regular income is very precious to us so we can plan our services for the year, organise family days etc.
By setting up a standing order (anything from £5 per month) you will receive newsletters (usually two each year) to keep you updated on fundraising, research developments, new medical articles, how your donation is helping families and so on.
In each newsletter I will let you know how my son Jordan (The Boy with proteus syndrome, channel four 22 August 2005) is getting on too.
The newsletters are informative and always include colour photographs, some feature letters from families and top tips for those caring with children with proteus syndrome.
Not forgetting that we also support adults with Proteus syndrome, some of whom have gone years without ever meeting or talking to another individual with the same condition.
So what have you got to lose, give it a go even for one year!
To apply, fill out your details below or email me at:
remembering to provide your full name and address so I can send you the form.
You can make a difference, and you don't have to commit any time, just a small amount each month.