Dear family and friends

This is a quick note to say a BIG THANK YOU to you all – for your messages, phone calls, texts, visits, prayers, cards and pressies for Jordan.

Your kindness and support has made the last few weeks more bearable – from the time when we were first contemplating Jordan’s surgery, to the day he had the operation, his worrying time in intensive care and throughout his rehab programme.

Jordan had his surgery on 7th September and was discharged from RNOH on 22nd October, in time for his brothers 10th birthday the next day.  He had just 4 weeks of rehab, during which time he progressed from standing on his prosthetic leg with lots of help, to finally using crutches.  Some days now he is managing to walk with just a stick and went back to school full time last week!  He even retook his English GCSE this week as he wasn’t happy with his B grade!  Anyway you can tell I am a proud mum!

I hope the tales of “Forest” have added some fun to your days too!

You can keep up to date with Jordan’s progress on his blog here at:

www.proteus-syndrome.org.uk

or on facebook

Jordan is seeing his surgeon on 16th December to talk about having his left leg amputated possibly Feb 2010

Thanks so much again, we really appreciate it and sorry if I have not replied personally to every message.

Love from Tracey, Dean, Jordan and Kai
xx

Bedtime Forest

Cool Forest

Cosy Forest

Captain Jack Forest “Aaargh!”

Lumberjack Forest

Skater boy Forest

To boldy go where no Forest has gone before

Jordan has quickly progressed from walking frame to crutches this week and is doing better than anyone imagined.  Still having physio twice a day and using the exercise ball and sometimes the Wii machine.  He still gets phantom pains late at night which mean he can’t get to sleep so we have asked to see the specialist pain nurse today.

Week 3 of rehab is going really well for Jordan.  He has his new prosthetic leg now which he is finding much more comfortable and easier to get on.  His new leg has a knee joint and he used it to sit down in a normal chair today. Jordan is having physio twice a day and he is trying to fit in his school work too.  Thanks to everyone for their support, especially family and friends!

Tracey & Jordan xx

Jordan having fun with his newest friend ‘Forest’!

This is Forest

Hoody Forest

Sleepy Forest

Mummy Forest

Olympian Forest

Footy Forest

Bespectacled Forest

Forest & Friend

Forest in touch with his feminine side

Chicken, where?

Captain Jack Forest

Rock Star Forest

Sporty Forest

Rusky Forest

Madonna Forest

Alien Forest

DJ Forest

Forest trying to look intelligent reading the newspaper

Loadsa money Forest

Skater boy Forest

Forest riding an emu!

The official Forest fan club

a hug for Forest

Jordan was admitted back to RNOH this week to begin his rehab programme.  He had the first fitting of his prosthetic leg yesterday and managed to tolerate the “socket” and stood on the leg.  He even managed a couple of steps.  The next few weeks are about getting him stronger, getting the fit of the leg right and getting him standing for longer periods of time.  He is trying to get his school work done in between physio sessions and my mum and I have been helping with with an art project – looking around the grounds for things for him to draw and paint (still life).  My mum has made some proper “eyes” for “Forrest” and this has made the nurses and physios laugh!
The staff at the Royal National Orthopaedic hospital have been fantastic – very helpful and supportive and I would like to thank them all – the doctors, nurses, physios, teachers, play specialists and everyone involved in Jordan’s care.
Pictures of “Forrest” to follow soon!
Tracey x

Hello everyone

Just to let you all know that Jordan is back at home until Monday 28th Sept.

Have to go back to RNOH for the day this coming Friday for the stitches to come out and for a cast to be taken of “Forest” (his stump!).

Once he is readmitted on Monday 28th he will be in hospital for 4 to 6 weeks, allowed home at weekends. Fitting of the prosthetic will take place on Tues 29th Sept and Thursday 1st October.

He is doing well, has physio exercises to do 2/3 times a day, still getting phantom pains but has special drugs to dampen that down.

Here are a couple of photos showing how well Jordan is adjusting!

Love Dean, Tracey and Kai

xx

Jordan is doing well and has started his physio programme.  Has stood up a few times with the parallel bars.  His chest is improving and we took him to the cafe for cooked breakfast this morning!  They may let Jordan home for the weekend then back Monday to have his stiches out.  They are doing the cast for his prosthetic leg next Friday then fitting the following Tuesday and Thursday.  All is going well and Jordan is proving to be as tough as ever! He has no regrets at all about the surgery and is already talking about having the other leg done!

Thanks to everyone for their messages, cards, presents and visits.

Love Dean & Tracey
xx

Jordan is now back on the ward and doing very well.  Sat out in his wheelchair today and did quite a few exercises with the physiotherapist Emily.  He also stood up on crutches for a few seconds with his other physio Sheila.  He is getting phantom pains and his chest still needs to clear but overall he is doing remarkably well.  In a side room for now as his white blood cell count has gone quite low.

Thanks as ever for all your messages and cards.

Love Tracey & Dean