Comments for PSF http://www.proteus-syndrome.org.uk/blog Just another WordPress weblog Wed, 16 Nov 2011 17:52:48 +0000 hourly 1 http://wordpress.org/?v=3.2.1 Comment on Jordan walking less than one month after the surgery! by Jeanette Sitton http://www.proteus-syndrome.org.uk/blog/2009/10/jordan-walking-less-than-one-month-after-the-surgery/comment-page-1/#comment-787 Jeanette Sitton Wed, 16 Nov 2011 17:52:48 +0000 http://www.proteus-syndrome.org.uk/blog/?p=130#comment-787 You're amazing, Jordan!! Great work! Big hug from us all at the 'Friends of...' Group. x You’re amazing, Jordan!! Great work!
Big hug from us all at the ‘Friends of…’ Group. x

]]> Comment on Happy 16th Birthday Jordan by Mae Stroshane http://www.proteus-syndrome.org.uk/blog/2011/02/happy-16th-birthday-jordan/comment-page-1/#comment-786 Mae Stroshane Tue, 15 Nov 2011 03:27:25 +0000 http://www.proteus-syndrome.org.uk/blog/?p=274#comment-786 Hi Jordan I hope you're doing well these days! Looking forward to including your story in our upcoming book (ssshhhh:-) Mae from Boston Hi Jordan
I hope you’re doing well these days!
Looking forward to including your story in our upcoming book (ssshhhh:-)
Mae from Boston

]]> Comment on Jordans speech receives standing ovation by neuza martins http://www.proteus-syndrome.org.uk/blog/2009/01/jordans-speech-receives-standing-ovation/comment-page-1/#comment-781 neuza martins Thu, 27 Oct 2011 19:56:57 +0000 http://www.proteus-syndrome.org.uk/blog/?p=72#comment-781 estou sempre a procura de noticias do jordan mas não concigo pois não falo ingles mas es um batalhador ,e es um menino lindo ,se parece muito com meu filho ,beijinhos querido e que deus te abençoe sempre. English (google translation): I am always looking for news of jordan concigo but not because I do not speak English but they are still a fighter, and an s beautiful boy, looks a lot like my son, kisses and dear god bless you always. estou sempre a procura de noticias do jordan mas não concigo pois não falo ingles mas es um batalhador ,e es um menino lindo ,se parece muito com meu filho ,beijinhos querido e que deus te abençoe sempre.

English (google translation): I am always looking for news of jordan concigo but not because I do not speak English but they are still a fighter, and an s beautiful boy, looks a lot like my son, kisses and dear god bless you always.

]]> Comment on Happy 16th Birthday Jordan by Antonio Saravia http://www.proteus-syndrome.org.uk/blog/2011/02/happy-16th-birthday-jordan/comment-page-1/#comment-777 Antonio Saravia Sat, 08 Oct 2011 07:30:05 +0000 http://www.proteus-syndrome.org.uk/blog/?p=274#comment-777 Hi Jordan Happy birthday, I wrote you before and I'm writing again from Mexico, I'm so happy that you are doing great, keep with the hard work, you have a lot of fans here in mexico and they all supportin you. Best wishes Hi Jordan Happy birthday, I wrote you before and I’m writing again from Mexico, I’m so happy that you are doing great, keep with the hard work, you have a lot of fans here in mexico and they all supportin you. Best wishes

]]> Comment on Happy 16th Birthday Jordan by georgina sinclair http://www.proteus-syndrome.org.uk/blog/2011/02/happy-16th-birthday-jordan/comment-page-1/#comment-772 georgina sinclair Mon, 03 Oct 2011 09:39:49 +0000 http://www.proteus-syndrome.org.uk/blog/?p=274#comment-772 Hi Jordan, I saw the documentary of when you were 9 years old last night.(The boy in a Million)Your smile blesses people around you. This morning I went on the web to find out more about the syndrome and see that you have grown into such a fine young man. I want you to know that your spirit is an inspiration to so many normal people who tend to moan about nothing. Thank you and take care. Georgina Hi Jordan,
I saw the documentary of when you were 9 years old last night.(The boy in a Million)Your smile blesses people around you. This morning I went on the web to find out more about the syndrome and see that you have grown into such a fine young man. I want you to know that your spirit is an inspiration to so many normal people who tend to moan about nothing. Thank you and take care.
Georgina

]]> Comment on Jordan gets back to normal by Sally Ellis http://www.proteus-syndrome.org.uk/blog/2010/07/jordan-gets-back-to-normal/comment-page-1/#comment-771 Sally Ellis Sat, 01 Oct 2011 18:12:58 +0000 http://www.proteus-syndrome.org.uk/blog/?p=236#comment-771 (Saturday 1 Oct 2011) From KwaZulu-Natal, South Africa. I just watched the documentary shot when Jordan was 9. I HAD to find out what might have happened... So when I found this report I was so excited and pleased for you. I'll never meet you, but please know that your story inspired me. How can I give up when you obviously haven't. So thank you Jordan, and your family, for giving this old woman hope for tomorrow. (Saturday 1 Oct 2011) From KwaZulu-Natal, South Africa. I just watched the documentary shot when Jordan was 9. I HAD to find out what might have happened… So when I found this report I was so excited and pleased for you.
I’ll never meet you, but please know that your story inspired me. How can I give up when you obviously haven’t.
So thank you Jordan, and your family, for giving this old woman hope for tomorrow.

]]> Comment on NEWSFLASH! by john ward http://www.proteus-syndrome.org.uk/blog/2011/08/newsflash/comment-page-1/#comment-754 john ward Sun, 04 Sep 2011 09:26:11 +0000 http://www.proteus-syndrome.org.uk/blog/?p=294#comment-754 Well done to Dr Biesecker, as i have KWTS i hope they can find a pain killing cure for the severe pain that occurs with this syndrome Well done to Dr Biesecker, as i have KWTS i hope they can find a pain killing cure for the severe pain that occurs with this syndrome

]]> Comment on Jordans November Update by Nicola Dodd http://www.proteus-syndrome.org.uk/blog/2008/11/jordans-november-update/comment-page-1/#comment-749 Nicola Dodd Wed, 24 Aug 2011 21:07:09 +0000 http://www.proteus-syndrome.org.uk/blog/?p=55#comment-749 Hi Jordan, I just saw you on the TV programme about Mandy and her amputated leg and had to get in touch and say that you are the most inspirational young chap that I have ever encountered. Your mum is also amazing. I was truly humbled by your attitude, what a fantastic role model to other boys and girls, and adults like me, you are. You are one in a billion. Nicola Hi Jordan, I just saw you on the TV programme about Mandy and her amputated leg and had to get in touch and say that you are the most inspirational young chap that I have ever encountered. Your mum is also amazing. I was truly humbled by your attitude, what a fantastic role model to other boys and girls, and adults like me, you are. You are one in a billion. Nicola

]]> Comment on Happy 16th Birthday Jordan by lizzie mullen http://www.proteus-syndrome.org.uk/blog/2011/02/happy-16th-birthday-jordan/comment-page-1/#comment-748 lizzie mullen Wed, 24 Aug 2011 20:56:12 +0000 http://www.proteus-syndrome.org.uk/blog/?p=274#comment-748 Hi Jordan, have just seen you on channel 5 in a documentary about a lady called Mandy Sellars, who also has Proteus. Ive been following your story, and it was great to see you again,doing so well, and looking so handsome! You are so strong, and truly inspirational, and i wish you all the love and luck in the world. Take care x Lizzie Hi Jordan, have just seen you on channel 5 in a documentary about a lady called Mandy Sellars, who also has Proteus. Ive been following your story, and it was great to see you again,doing so well, and looking so handsome! You are so strong, and truly inspirational, and i wish you all the love and luck in the world. Take care x

Lizzie

]]> Comment on Happy 16th Birthday Jordan by MARK CARDWELL http://www.proteus-syndrome.org.uk/blog/2011/02/happy-16th-birthday-jordan/comment-page-1/#comment-741 MARK CARDWELL Sat, 20 Aug 2011 16:49:56 +0000 http://www.proteus-syndrome.org.uk/blog/?p=274#comment-741 i do not know if you remember me i did the london marathon in 2000 and met you it was sad to hear about your surgery and hope you are well i heard about this from the woman here in lancashire who ask me to do the marathon and wanted to find out how you are hope your family are ok and this might help i was sick at the end of the race and i still have your picture on my kitchen cupboard it gives me insparation when things are not to well for me hope you will reply and let me know how you are all the best from mark i do not know if you remember me i did the london marathon in 2000 and met you it was sad to hear about your surgery and hope you are well i heard about this from the woman here in lancashire who ask me to do the marathon and wanted to find out how you are hope your family are ok and this might help i was sick at the end of the race and i still have your picture on my kitchen cupboard it gives me insparation when things are not to well for me hope you will reply and let me know how you are all the best from mark

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