Hello everyone

Just to let you all know that Jordan is back at home until Monday 28th Sept.

Have to go back to RNOH for the day this coming Friday for the stitches to come out and for a cast to be taken of “Forest” (his stump!).

Once he is readmitted on Monday 28th he will be in hospital for 4 to 6 weeks, allowed home at weekends. Fitting of the prosthetic will take place on Tues 29th Sept and Thursday 1st October.

He is doing well, has physio exercises to do 2/3 times a day, still getting phantom pains but has special drugs to dampen that down.

Here are a couple of photos showing how well Jordan is adjusting!

Love Dean, Tracey and Kai

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Jordan is doing well and has started his physio programme.  Has stood up a few times with the parallel bars.  His chest is improving and we took him to the cafe for cooked breakfast this morning!  They may let Jordan home for the weekend then back Monday to have his stiches out.  They are doing the cast for his prosthetic leg next Friday then fitting the following Tuesday and Thursday.  All is going well and Jordan is proving to be as tough as ever! He has no regrets at all about the surgery and is already talking about having the other leg done!

Thanks to everyone for their messages, cards, presents and visits.

Love Dean & Tracey
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Jordan is now back on the ward and doing very well.  Sat out in his wheelchair today and did quite a few exercises with the physiotherapist Emily.  He also stood up on crutches for a few seconds with his other physio Sheila.  He is getting phantom pains and his chest still needs to clear but overall he is doing remarkably well.  In a side room for now as his white blood cell count has gone quite low.

Thanks as ever for all your messages and cards.

Love Tracey & Dean

After feeing poorly and a CT scan at midnight, Jordan was taken to intensive care on Wednesday night with a suspected pulmonary embolism – this was probably the worst few hours of my life.  Luckily (!) he just has a collapsed lung and chest infection which is now responding well to treatment and we are hoping he will go back to the ward tomorrow.

The actual operation has gone well and the plaster cast came off his stump today, is  healing so well and has been nicknamed by Jordan as “Forest” – (as in Forest Gump/Stump!). Jordan is moving it about with confidence.  he has had the phantom feelings of his whole leg as we were told to expect and thinks it is quite “cool” to “kick” with the leg that isnt there anymore!

Jordan is coping amazingly well.

Thanks to everyone who has sent cards – it means so much to Jordan and to us, we have had such tremendous support.

Thank you

Tracey and Dean

A message from Tracey and Dean:

“Jordan had his surgery and all went well with no airway problem and no tracheostomy needed. Jordan came out of intensive care yesterday and is doing well. He is still quite uncomfortable but the doctors are doing their best to keep it under control. The loss of his right leg is quite a shock but it is early days yet. Thanks to everyone for their cards,presents and texts”

Love Tracey and Dean

Today (27th August 2009) Jordan successfully passed his GCSE in Statistics and English. Furthermore, he did it two years early! Congratulations Jordan.

Dear family and friends

Many of you have asked to be kept informed so here goes…….

Just to let you know that following Jordan’s admission to Royal National Orthopaedic hospital in Stanmore last week, he has decided he wants to go ahead with the amputation of his right leg (above the knee).  In the event that he needs a tracheostomy (not a high possibility) he will have the option of having his left foot removed during the same hospital admission. This is because subsequent surgeries will carry a higher risk.

This has not been a quick or easy decision for Jordan (or us as a family) and he is still very scared (mostly about making it through the surgery).  Thank you to all the support we have had so far, I have a feeling lots more will be needed!  His surgery is planned for 7th September.

He will probably be in hospital for 2 weeks initially (depending on how much he has done, could be longer) then come come for about 3 weeks for healing.  His rehab when he goes back to hospital could take 2 to 3 months (or longer).  It is not guaranteed that he will be able to wear a prosthetic limb but that is Jordan’s hope. He is going in to this knowing all the risks as well as worst and best case scenarios.

Please keep Jordan in your thoughts and prayers.  Thank you

Tracey, Dean and Kai
xxxx

He is at an age when most boys still dream of running on at Wembley to score the winning goal for England. Instead 14 year old Jordan Whitewood-Neal is faced with the grim reality of having his leg amputated because he is in so much pain. Full story here:

http://www.bexhillobserver.net/news/Jordan39s-tough-decision.5282142.jp