Myself, Jordan and his brother Kai have started martial arts one night a week! The instructor lets Jordan do what he can in his wheelchair and has gained permission to “grade” Jordan for his Yellow belt. Jordan grades on 8 October!

Since the documentary support has poured in for Jordan and invites to days out. He was the mascot for the Hastings United Football Club, where they won 4 – nil. Jordan received a signed kit, football and season ticket.

Jordan was also invited to watch Sussex County Cricket team where that won against Yorkshire. They presented Jordan with two bats signed by all the players.

Jordan was taken out by Cherished memories to Silverstone by limousine! Him and his brother Kai had a great day out.

They met the Jordan and BMW teams and watched the cars being prepared and tested. They also went round the track in a pace car.

Jordan visited Chelsea last December as part of winning a Children of Courage award – you can read about his time in the USA newsletter but this is what Jordan wrote:

“Now I want to tell you about Chelsea and when I went up there. It was a wish of mine to go up and see the squad and Frank Lampard. It was the best day ever, I saw a match, Chelsea won 4-0, I also got a scarf, signed shirt and my wish”.

Jordan was featured in a Chelsea match programme and his shirt and photo have pride of place on his bedroom wall.

After the documentary a lady called Lisa and her boss Guy (both from UBS Investment Bank) arranged a day out for Jordan to watch Chelsea again. Jordan’s uncle Chris (also a Chelsea supporter) went with him, a chauffeur car picked them up and a good time was had by all!

UBS have launched an appeal for the PSF UK on their internal Intranet site.

A local lady called Sue is climbing Kilamanjaro raising money for Jordan, she is going to place a special Jordan/PSF lag at the top!

Jordan visited the Research Programme in USA for the third time last October. They recommended stapling of the knees to try and get his legs straighter, previous more radical surgeries had not worked.

Here is what Jordan wrote about his operations:

“Hello I am Jordan and I am going to tell you about the three operations that I have had in the last three months. The first one was to have staples put in my legs in my knees which was to hopefully stop them bending the wrong way. But after about 4 weeks they came out. So I had another operation to put them back in. The second operation was the worst, so much pain. But once again after 5 weeks this time they came out again. This time the pain after, was, well, there was no pain until I started to walk again it stung. The worst thing though was that I could not play football. But now after 4 months I am playing again. YEEAHH!”

During this time Jordan had a chest infection followed by a vein infection.

Jordan appeared on a Channel Four Documentary “The Boy with Proteus syndrome” on Monday 22 August 2005. Since then Jordan has attracted quite a fan club! People have been extremely generous, sending Jordan money for his fund and presents ranging from Yu Gi Oh cards, signed David Beckham boots, music CDs and sweets, to heat pads for his knees. We truly appreciate and welcome this kindness, generosity and support. You know who you are, Thank you!