I have some amazing news to share with you all – we have a new patron to sit along side John Hurt. We are very honoured to welcome Joseph Drake to our charity. This is what he had to say:
“I recently played Joseph Merrick in a television drama set in Victorian London. It was a moving experience, also an inspiring one.
He was a young man who suffered great pain at the hands of Proteus Syndrome, and yet without his strength of spirit and the help of numerous professionals and loved ones, his short life would’ve been an even harsher ordeal.
I am therefore incredibly proud to become a patron of the Proteus Syndrome Foundation, a vital charity that provides much needed support and care for sufferers of this debilitating condition.
The PSF is doing superb work in the attempt to find a cure for Proteus, and though there has been great progress, with the cause gene having been discovered, the urgent search for the cure continues. Due to the relative rareness of the condition, it is proving difficult to spur the pharmaceutical companies into action, so we need all the help we can get.
I care passionately about this cause and I’m really keen to help in any way possible”.