Joseph Merrick, the Elephant Man, was a 19th century Englishman who suffered disfigurement from an extremely rare disorder, which is believed to be Proteus Syndrome. Though his physical and mental suffering was great, he remained courageous. ‘Measured by the Soul,’ is lavishly illustrated with never-seen-before photographs of Joseph’s life and Victorian times. This book also features interviews with modern patients who live with Proteus Syndrome (including Jordan and Tracey), as well as exciting news from Dr. Leslie Biesecker of the National Institute of Health in Bethesda, Maryland. Thanks to Dr. Biesecker’s research, there is hope for new treatment of Proteus Syndrome and its ultimate cure.
Proceeds from this book will benefit Proteus Syndrome treatment and research. US$13.99 / £8.47
For more information and to purchase your copy please visit: