Jordan and I attended the Proteus conference in USA last weekend (8th Oct). We were very lucky to have volunteers to both record and edit the footage.
This means you can listen to all the speakers in the comfort of your own home!
There are talks by Les Biesecker, Dr Michael Cohen, Laura Tosi (orthopaedic surgeon), Barbara Biesecker (genetic counsellor), Tom Darling (dermatology) and also by individuals affected by Proteus. You can hear first hand about the research and the way forward.
I hope you enjoy watching and listening. Our videographer offers her apologies that there may be some places in the video that are not perfect but hopes it is a wonderful experience for all.
When you open the site below, look on the right of the home page and select each topic individually when you are ready to listen and watch.
To view and download, go to: