Comments on: Thank you all! http://www.proteus-syndrome.org.uk/blog/2009/11/thank-you-all/ Just another WordPress weblog Wed, 16 Nov 2011 17:52:48 +0000 hourly 1 http://wordpress.org/?v=3.2.1 By: German & Magali http://www.proteus-syndrome.org.uk/blog/2009/11/thank-you-all/comment-page-1/#comment-648 German & Magali Wed, 19 Jan 2011 05:14:31 +0000 http://www.proteus-syndrome.org.uk/blog/?p=188#comment-648 Hi Jordan! We are from Argentina.. we saw your story on TV and we just wanted to tell you that we are very proud of you, you are a very cute boy and you have a great family!!! We are sure everything's gonna be ok, and we wish you the best because you deserve it! German and Magali ps: we love football too :) Hi Jordan! We are from Argentina.. we saw your story on TV and we just wanted to tell you that we are very proud of you, you are a very cute boy and you have a great family!!!
We are sure everything’s gonna be ok, and we wish you the best because you deserve it!
German and Magali
ps: we love football too :)

]]> By: Anezka http://www.proteus-syndrome.org.uk/blog/2009/11/thank-you-all/comment-page-1/#comment-646 Anezka Sat, 08 Jan 2011 10:01:54 +0000 http://www.proteus-syndrome.org.uk/blog/?p=188#comment-646 Hello. My name is Annie, I'm from the Czech Republic. (A small country next to Germany, France, Poland). Now I saw on TV the story of Jordan. The whole time I was almost breathless, and could not believe how can anyone be so incredibly strong! I admire you for your optimism, smile and strength to fight! I wish your family good luck, health and love that you miss, and it's nice :-) I'll think of you every day and hope the distance with you for a better tomorrow! Greetings and keep my fingers crossed! Hello. My name is Annie, I’m from the Czech Republic. (A small country next to Germany, France, Poland). Now I saw on TV the story of Jordan. The whole time I was almost breathless, and could not believe how can anyone be so incredibly strong! I admire you for your optimism, smile and strength to fight! I wish your family good luck, health and love that you miss, and it’s nice :-) I’ll think of you every day and hope the distance with you for a better tomorrow! Greetings and keep my fingers crossed!

]]> By: magnolia duque http://www.proteus-syndrome.org.uk/blog/2009/11/thank-you-all/comment-page-1/#comment-640 magnolia duque Sun, 19 Dec 2010 22:35:14 +0000 http://www.proteus-syndrome.org.uk/blog/?p=188#comment-640 Hola jordan, desde Colombia, te conosi atraves de la television,Quiero decirte que desde que te vi a ti y a tus padres no los he podido olvidar, Pieso que eres un ser maravilloso, Creo que a Dios le ha placido hacerte especial, talvez paraque el mundo entero aprendamos de ti,pues eres un ejemplo de vida.Aveces es mejor no preguntarle a Dios el porque de lo que nos sucede,pues El tiene un proposito especial con cada uno, creo que Dios te ama mucho pues te ha bendecido con unos padres tan valientes y amorosos, Sigue luchando como hasta hoy lo has hecho,y auque es dificil. Aprende a darle gracias a Dios en todos los momentos de tu vida y por tu vida misma, Desde aqui estare orando por ti cada dia, pues creo que Diosito es poderoso y puede hacer muchas cosas hermosas en tu vida,estoy segura! solo debemos creer y confiar en el. Desde Colombia mis hijos y yo te amamos y te deseamos lo mejor. Hola jordan, desde Colombia, te conosi atraves de la television,Quiero decirte que desde que te vi a ti y a tus padres no los he podido olvidar, Pieso que eres un ser maravilloso, Creo que a Dios le ha placido hacerte especial, talvez paraque el mundo entero aprendamos de ti,pues eres un ejemplo de vida.Aveces es mejor no preguntarle a Dios el porque de lo que nos sucede,pues El tiene un proposito especial con cada uno, creo que Dios te ama mucho pues te ha bendecido con unos padres tan valientes y amorosos, Sigue luchando como hasta hoy lo has hecho,y auque es dificil. Aprende a darle gracias a Dios en todos los momentos de tu vida y por tu vida misma, Desde aqui estare orando por ti cada dia, pues creo que Diosito es poderoso y puede hacer muchas cosas hermosas en tu vida,estoy segura! solo debemos creer y confiar en el. Desde Colombia mis hijos y yo te amamos y te deseamos lo mejor.

]]> By: Clair Desiree http://www.proteus-syndrome.org.uk/blog/2009/11/thank-you-all/comment-page-1/#comment-638 Clair Desiree Tue, 23 Nov 2010 00:22:42 +0000 http://www.proteus-syndrome.org.uk/blog/?p=188#comment-638 Dear sweet Jordon. I am a registered nurse and mother to a 10yr old daughter. I watched a doc on Mandy Sellars, I am sure you are aware of her. I then looked up Proteus on the internet and found your story. Firstly I must say that you are a very handsome man.You ooze charisma and happy energy in all your snaps. Your family are amazingly dedicated to providing you with all that they can and this is remarkable. In a world which is plagued by appearances and superficiality I applaud your courage to lead as normal a life as possible. You are wonderful, inspirational and courageous. They say that God only gives up what we can handle, and perhaps that is true. You will shine wherever you go, and in whatever you do. Your smile is the window to your beautiful mind and soul. I will always remember your story and be humbled and in awe of your drive to strive. Dear sweet Jordon. I am a registered nurse and mother to a 10yr old daughter. I watched a doc on Mandy Sellars, I am sure you are aware of her. I then looked up Proteus on the internet and found your story. Firstly I must say that you are a very handsome man.You ooze charisma and happy energy in all your snaps. Your family are amazingly dedicated to providing you with all that they can and this is remarkable. In a world which is plagued by appearances and superficiality I applaud your courage to lead as normal a life as possible. You are wonderful, inspirational and courageous. They say that God only gives up what we can handle, and perhaps that is true. You will shine wherever you go, and in whatever you do. Your smile is the window to your beautiful mind and soul. I will always remember your story and be humbled and in awe of your drive to strive.

]]> By: Alessandra Fontes http://www.proteus-syndrome.org.uk/blog/2009/11/thank-you-all/comment-page-1/#comment-634 Alessandra Fontes Thu, 21 Oct 2010 18:48:56 +0000 http://www.proteus-syndrome.org.uk/blog/?p=188#comment-634 Hi Jordan, I'm from Brazil and i have a pacient with proteus. His name is Caue and he has 15. I'm phisicotherapist and we work togheter for 8 years. We don´t have a foundaition here, so we want to talk with people who has the same problem! I saw your history and the only thing to say is: You are a chanpion!!!!!!!!!!! Congratrulation We realy want t keep contact, may we? kisses from Brazil Hi Jordan, I’m from Brazil and i have a pacient with proteus. His name is Caue and he has 15. I’m phisicotherapist and we work togheter for 8 years. We don´t have a foundaition here, so we want to talk with people who has the same problem!
I saw your history and the only thing to say is: You are a chanpion!!!!!!!!!!! Congratrulation
We realy want t keep contact, may we?
kisses from Brazil

]]> By: Salli http://www.proteus-syndrome.org.uk/blog/2009/11/thank-you-all/comment-page-1/#comment-625 Salli Tue, 10 Aug 2010 10:58:00 +0000 http://www.proteus-syndrome.org.uk/blog/?p=188#comment-625 Hi Jordan & family. I've stumbled on your website by pure accident! I was looking at the photos on positive exposure because some people with my sons syndrome (smith magenis) are on there and I saw your photo, and had to look you up because I thought you were just a stunning looking lad (your eyes caught my eyes!!) I found this site, and more information about you, and you are an inspiration. You have what looks like a wonderful support around you, and I hope you are loving your new legs! All the very best for the future. Salli in the UK> x Hi Jordan & family. I’ve stumbled on your website by pure accident! I was looking at the photos on positive exposure because some people with my sons syndrome (smith magenis) are on there and I saw your photo, and had to look you up because I thought you were just a stunning looking lad (your eyes caught my eyes!!) I found this site, and more information about you, and you are an inspiration. You have what looks like a wonderful support around you, and I hope you are loving your new legs! All the very best for the future. Salli in the UK> x

]]> By: Lenka http://www.proteus-syndrome.org.uk/blog/2009/11/thank-you-all/comment-page-1/#comment-611 Lenka Thu, 22 Jul 2010 03:24:25 +0000 http://www.proteus-syndrome.org.uk/blog/?p=188#comment-611 Hi Jordan, I am from Prague and my english is not so good unfortunately. I sew your documentary in Tv yesterday and i just want to tell you how beautiful, amazing boy with a good heart you are..! I wish you just the best to the future even to your family. Big kiss, take care, Lenka Hi Jordan,
I am from Prague and my english is not so good unfortunately. I sew your documentary in Tv yesterday and i just want to tell you how beautiful, amazing boy with a good heart you are..! I wish you just the best to the future even to your family.
Big kiss, take care,
Lenka

]]> By: Laura Baldock http://www.proteus-syndrome.org.uk/blog/2009/11/thank-you-all/comment-page-1/#comment-572 Laura Baldock Sat, 08 May 2010 23:50:05 +0000 http://www.proteus-syndrome.org.uk/blog/?p=188#comment-572 Hi Jordan, Having just watched your documentary, I would just like to say what a brave and gorgeous young man you are and what a fantastic family you have. You are an inspiration to us all. I wish you the very best for the future. Laura, London xxxx Hi Jordan, Having just watched your documentary, I would just like to say what a brave and gorgeous young man you are and what a fantastic family you have. You are an inspiration to us all. I wish you the very best for the future.
Laura, London xxxx

]]> By: Cathy-Ann Taylor http://www.proteus-syndrome.org.uk/blog/2009/11/thank-you-all/comment-page-1/#comment-567 Cathy-Ann Taylor Tue, 13 Apr 2010 17:51:08 +0000 http://www.proteus-syndrome.org.uk/blog/?p=188#comment-567 Hi Jordan, I watched your documentary a few weeks ago now and was so touched by your strength and determination. After watching your story I was compelled to search the internet to check your progress and see how you were doing. I am glad to hear you are doing very well and I wish you all the best of luck for the future. Your are such a credit to your Mum and Dad and think that you are such an inspiration to everyone, you keep up your determination and you can achieve anything you want. God bless & take care Cathy-Ann Hi Jordan, I watched your documentary a few weeks ago now and was so touched by your strength and determination. After watching your story I was compelled to search the internet to check your progress and see how you were doing. I am glad to hear you are doing very well and I wish you all the best of luck for the future. Your are such a credit to your Mum and Dad and think that you are such an inspiration to everyone, you keep up your determination and you can achieve anything you want.

God bless & take care

Cathy-Ann

]]> By: sonia mendoza http://www.proteus-syndrome.org.uk/blog/2009/11/thank-you-all/comment-page-1/#comment-566 sonia mendoza Sat, 10 Apr 2010 23:52:21 +0000 http://www.proteus-syndrome.org.uk/blog/?p=188#comment-566 hola jordan, soy de Mexico, y quiero decirte que te conoci a ti y a tu familia en la conferencia de las familias de proteux en el 2002. Asistimos con Andrea Marin, en pequeño llamado fernando y mi hijo juan guillermo. Un abrazo muy fuerte y sabes el convivir con un niño especial en una gran bendicion, se que los trastornos son complicados pero, son personas muy lidas. sabes en mexico nosotros haciamos nuestra pequeña reunion siempreen diciembre, y no la pasabamos muy bien . Te deseo lo mejor, y mi admiracion a tu mama, porque ella tambien es alguien muy especial, un abrazo para ambos. [google translation] jordan hi I'm from Mexico, and I want to tell you that I met you and your family in the conference proteux families in 2002. Andrea Marin assist in small and my son called fernando juan guillermo. A big hug and you know the special child live with a great blessing is that the disorders are complicated, but people are very lidas. mexico us know in our small meetings where December and not moved on very well. All the best, and my admiration for your mom, because she is also someone very special, a hug for both. hola jordan, soy de Mexico, y quiero decirte que te conoci a ti y a tu familia en la conferencia de las familias de proteux en el 2002. Asistimos con Andrea Marin, en pequeño llamado fernando y mi hijo juan guillermo.
Un abrazo muy fuerte y sabes el convivir con un niño especial en una gran bendicion, se que los trastornos son complicados pero, son personas muy lidas.
sabes en mexico nosotros haciamos nuestra pequeña reunion siempreen diciembre, y no la pasabamos muy bien .
Te deseo lo mejor, y mi admiracion a tu mama, porque ella tambien es alguien muy especial, un abrazo para ambos.

[google translation] jordan hi I’m from Mexico, and I want to tell you that I met you and your family in the conference proteux families in 2002. Andrea Marin assist in small and my son called fernando juan guillermo.
A big hug and you know the special child live with a great blessing is that the disorders are complicated, but people are very lidas.
mexico us know in our small meetings where December and not moved on very well.
All the best, and my admiration for your mom, because she is also someone very special, a hug for both.

]]>