Comments on: Thank you all!

By: Salli

Salli — Tue, 10 Aug 2010 10:58:00 +0000

Hi Jordan & family. I’ve stumbled on your website by pure accident! I was looking at the photos on positive exposure because some people with my sons syndrome (smith magenis) are on there and I saw your photo, and had to look you up because I thought you were just a stunning looking lad (your eyes caught my eyes!!) I found this site, and more information about you, and you are an inspiration. You have what looks like a wonderful support around you, and I hope you are loving your new legs! All the very best for the future. Salli in the UK> x

By: Lenka

Lenka — Thu, 22 Jul 2010 03:24:25 +0000

Hi Jordan,
I am from Prague and my english is not so good unfortunately. I sew your documentary in Tv yesterday and i just want to tell you how beautiful, amazing boy with a good heart you are..! I wish you just the best to the future even to your family.
Big kiss, take care,
Lenka

By: Laura Baldock

Laura Baldock — Sat, 08 May 2010 23:50:05 +0000

Hi Jordan, Having just watched your documentary, I would just like to say what a brave and gorgeous young man you are and what a fantastic family you have. You are an inspiration to us all. I wish you the very best for the future.
Laura, London xxxx

By: Cathy-Ann Taylor

Cathy-Ann Taylor — Tue, 13 Apr 2010 17:51:08 +0000

Hi Jordan, I watched your documentary a few weeks ago now and was so touched by your strength and determination. After watching your story I was compelled to search the internet to check your progress and see how you were doing. I am glad to hear you are doing very well and I wish you all the best of luck for the future. Your are such a credit to your Mum and Dad and think that you are such an inspiration to everyone, you keep up your determination and you can achieve anything you want.

God bless & take care

Cathy-Ann

By: sonia mendoza

sonia mendoza — Sat, 10 Apr 2010 23:52:21 +0000

hola jordan, soy de Mexico, y quiero decirte que te conoci a ti y a tu familia en la conferencia de las familias de proteux en el 2002. Asistimos con Andrea Marin, en pequeño llamado fernando y mi hijo juan guillermo.
Un abrazo muy fuerte y sabes el convivir con un niño especial en una gran bendicion, se que los trastornos son complicados pero, son personas muy lidas.
sabes en mexico nosotros haciamos nuestra pequeña reunion siempreen diciembre, y no la pasabamos muy bien .
Te deseo lo mejor, y mi admiracion a tu mama, porque ella tambien es alguien muy especial, un abrazo para ambos.

[google translation] jordan hi I’m from Mexico, and I want to tell you that I met you and your family in the conference proteux families in 2002. Andrea Marin assist in small and my son called fernando juan guillermo.
A big hug and you know the special child live with a great blessing is that the disorders are complicated, but people are very lidas.
mexico us know in our small meetings where December and not moved on very well.
All the best, and my admiration for your mom, because she is also someone very special, a hug for both.

By: Sue Smith

Sue Smith — Tue, 06 Apr 2010 08:59:42 +0000

Hi there Jordan,
Thank you for sharing your life with us. I have read your blog and so admire you and your spirit. I suffer with depression and have at times allowed it to overwhelm
my life and i feel ashamed knowing what you have to endure in your young life.
A friends Mother had Proteus Syndrome but that was back in the 1950′s when there was much ignorance about it and it mean’t a life of isolation for her at that time.
I feel we have much to learn from people like you Jordan.
I wish i was more like you.
Take care and every good wish for you and your family.
Sue

By: Sally Hart

Sally Hart — Fri, 26 Mar 2010 10:41:24 +0000

The documentary called ‘boy in a million’ has just been shown in Australia and i felt compelled to check the internet to make sure Jordan was still doing well and still looking as beautiful and sunny as he did on the show. You truly have the face of an angel! I’m so happy that you are doing so well and i wish you all the luck with your rehab. You have a very special, wonderful Mum and I hope you both look after each other, Sally x

By: Bette

Bette — Mon, 04 Jan 2010 06:45:55 +0000

You are loud and proud and I am humbled. Thank you for sharing your story.Sometimes I look at individuals with challenges and I think “why them and not me?” I believe that I wouldn’t have the right stuff with which to make a positive impact. But you do. You have the right stuff and again, I feel humbled.

By: ben abbot

ben abbot — Fri, 11 Dec 2009 10:43:33 +0000

Great to catch up with what’s going on with Jordan.
As ever, great to see his beaming face and sense of fun shining out! His rehabilitation is, as ever, remarkable.
I am in a real rush but will be back very soon for regular updates.
Good luck with everything!
Ben

By: Juan J Campos

Juan J Campos — Thu, 26 Nov 2009 12:24:38 +0000

Hi everyone and specially you Jordan, I wish you good luck in the operation, I’m sure everything is going to be OK.

Bye!