Comments on: Jordan update

By: Anna Marie

Anna Marie — Wed, 21 Jul 2010 20:38:24 +0000

Hi Jordan !
My name is Anna Marie and I´m from Czech Republic. I saw a television program about Proteus Syndrome today. I am very interested in it, because I study to help these people like you. When I saw the documentary, I immediately knew that I should do something. When I saw your smile, was in the magic and inspiration. Have a lot of courage, positive thinking and success in football . Have a nice day Jordan!

By: Yana

Yana — Mon, 05 Apr 2010 18:08:10 +0000

Jordan,
you really handsome boy. Your smile is so magical!

By: faith

faith — Tue, 16 Feb 2010 01:04:41 +0000

Hello.My names is Faith and my 5 month old son has proteus syndrome.He is larger from his abdomene down.His left foot has extra tissue on the top.He is still able to stand.He has to wear cast on his feet to try to stop them from truning in. He is a very happy baby.I have to older girls and they adore him. I am so glade to see other people with this syndrome telling their storys.I dont feel so alone. Keep your head up and god bless.

By: Mylène

Mylène — Mon, 20 Oct 2008 12:30:37 +0000

Hi jordan,
I live in France, my daughter has the protéus syndrome
I just want to write you to give some courage and lots of think to you and your family, my daugther Emilie is 8 year now and she has only 2 fingers with problems and legs are not funny with her lots of distortions and often at hosptital but always lot of energy in her life and all our love.
Nice to meet you on internet.
Thanks and regards,
Myli.